A FEW WORDS FROM SOME OF US IN THE FILM
I am the Chair of the London Forum of Epilepsy Action support groups.
I was very keen to be involved in Sal Anderson’s film as I felt that it was a ground-breaking film exploring what it is like to have epilepsy and to live with the many problems which those with the condition face.
Epilepsy Action is the largest support-led organisation in the UK. It has groups throughout the country which help those living with or caring for someone with epilepsy. Many of those with epilepsy face huge stigma, difficulties getting a job and the side effects of the drugs, which can include memory problems. The support groups are vital for those of us living with the condition – in educating the general public as well as in giving support.
The film ‘What’s the Time Mr Wolf?’ contributes greatly to Epilepsy Action’s aims by highlighting the situation of those with epilepsy. It plays a valuable role in demonstrating epilepsy from a personal point of view and it deserves to be publicized and shown to as wide an audience as possible to help alleviate the many
LIVING WITH EPILEPSY
inaccurate assumptions and huge stigma that surround those with epilepsy. It is also a superb film!
“I was delighted to be part of the film and to explain how I feel living with epilepsy, and hope it changes peoples’ views of epilepsy as a condition and gets rid of the ignorance that is still out there.”
“Epilepsy seems to be the final taboo in our society. I was happy to be part of a film which, I hope, will help bust myths that fuel the stigma that surrounds the condition and hurts the people who have it.”
“For most people with epilepsy, the problem is not so much abnormal brain activity but fear and stigma.”
“From watching this film I’d like people to learn – or even to think about – what it’s like for us to have epilepsy and, most of all, for people to be more relaxed about it. I wouldn’t panic about telling people if it didn’t frighten them so much.”